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<span class="text"><b><font color="#006666" size="2"><span style="font-size:12px;line-height:15px;">Site Contents: Info for high functioning children: mainstreaming, anonymity, and<br soft="">
discrimination. Viable therapy options for social gray areas are presented<br soft="">
through my son's intervention summary. Specifics utilizing ABA delivered via NET<br soft="">
for Theory Of Mind, Executive Functioning, and Abstract Thinking deficits are<br soft="">
highlighted. The latest in biomedical treatment is included under Resources. <br>
<br>
My intent is to raise awareness about the wide range of children on the spectrum,<br soft="">
dispelling the stereotype that Autism is a hopeless untreatable disability. This<br soft="">
information is intended to be inspirational and informative only, and not intended<br soft="">
as medical advice. Material under Resources are from credible sources - the<br soft="">
goal being to provide the reader with sufficient reference for further<br>
individual investigation and assessment of information quality. Copyright<br soft="">
Protected, Hidden Recovery.com 2006<br soft=""></span></font></b></span>
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<td nowrap height="210" valign="top" bgcolor="#CCFFFF"><span class="text"><b><span style="font-size:10px;line-height:13px;">Discover Magazine: Autism, It's Not Just In The Head<br></span></b><b><span style="font-size:10px;line-height:13px;">March'07 <br>
The latest and greatest article that explains the unique GI and Immune<br soft="">
systems of our children. A great article to show skeptical relatives and<br soft="">
friends!</span></b><b><span style="font-size:10px;line-height:13px;"><br>
<br>
Times-Tribune:</span></b> <a href="timestribunemainstream.html"><b><span style="font-size:10px;line-height:13px;">Mainstreaming Autism</span></b></a> <b><span style="font-size:10px;line-height:13px;">(9/07)<br>
<br></span></b> <b><span style="font-size:10px;line-height:13px;">NPR Mainstreaming Autism Discussion</span></b><b><span style="font-size:10px;line-height:13px;"><br>
<br>
New York Times (11/06): </span></b><a href="studyingnotenough.html" target="_blank"><b><span style="font-size:10px;line-height:13px;">Studying Autism Isn't Enough<br>
<br></span></b></a> <b><span style="font-size:10px;line-height:13px;">For New Parents:</span></b> <span style="font-size:10px;line-height:13px;">ASD Warning Signs <br>
<br></span> <a href="files/pencilgrasp.pdf" target="_blank"><span style="font-size:10px;line-height:13px;">Development Of Pencil Grasp By Age<br soft=""></span></a></span></td>
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<span class="text"><b><font color="#333333" size="2"><span style="font-size:14px;line-height:17px;">AUTISM RECOVERY - THE HIDDEN TRUTH<br></span></font></b><b><font color="#333333"><span style="font-size:10px;line-height:13px;">Published online: 11/8/04 edition of the Schafer Report - updated slightly 08/07<br>
<br></span></font></b> <font size="2"><span style="font-size:14px;line-height:17px;">According to the National Institute of Health, 1 in 150 babies are born with an Autism Spectrum<br soft="">
Disorder. What needs to be known is this: Almost half of the children that get Early<br soft="">
Intervention make dramatic progress, some even recover. The fastest growing segment are<br soft="">
considered High-Functioning, often meaning they can or will eventually function in regular<br soft="">
classrooms, have friends, attend birthday parties and grocery stores with ease. Recovery<br soft="">
means that these kids are indistinguishable from their peers. Their disability no longer impairs<br soft="">
them from having a normal life. They no longer need support such as an aide in a classroom,<br soft="">
therapies, and biological intervention. Many children make incredible gains.<br>
<br>
Why is this the case now as we sit in 2007? Technology from this last decade has brought all<br soft="">
these children the chance for real progress and the unthinkable when we were kids, recovery. <br soft="">
Therapeutic intervention such as ABA, dietary intervention, and the DAN! protocol has<br soft="">
maximized the potential of our children. It’s not just a given that these children spend their<br soft="">
entire education in special education. Back when we were kids, it was one-stop-shopping with<br soft="">
our pediatricians. Today that’s just not possible and unfair to pediatricians. Twenty years<br soft="">
ago, we only had Greenspan’s Floortime Therapy for all special needs kids. Today there are<br soft="">
countless therapies to address our individual children’s needs and the growing variety of<br soft="">
disabilites out there. All we now know about our food supply and the environment has<br soft="">
dramatically improved the outcome of our children. <br>
<br>
Many High Functioning kids can learn in regular classrooms and other places. We all went to<br soft="">
school with a kid that was quirky didn’t we? Other kids CAN eventually get to that level of<br soft="">
functioning after receiving good therapy and lots of it. Having your precious child go to school<br soft="">
just like any other kid is a dream of every ASD parent. Just to get to that door, those hallways<br soft="">
that we all remember as a kid. The sounds of a school. The smell of the cafeteria, your<br soft="">
papers and books. <br>
<br></span></font> <b><font color="#666666" size="2"><span style="font-size:14px;line-height:17px;">Why don’t we hear about these kids? Where are they? What did their parents do to<br soft="">
make it happen?<br>
<br>
Because many parents keep the label a secret so their children can lead a<br soft="">
discrimination-free life. These parents move on, and try to recover themselves, and<br soft="">
create a new life for their family. They cannot be public about their past and support<br soft="">
autism efforts at the cost to their own kids. Unfortunately, the stigma of being less<br soft="">
than perfect still dominates. <br>
<br></span></font></b> <b><font size="2"><span style="font-size:14px;line-height:17px;">Because all parents discriminate<br></span></font></b><font size="2"><span style="font-size:14px;line-height:17px;">Parents often do not want their typical kids to play with children with special needs. It is not a<br soft="">
concern of mine if people get defensive by this fact. It is true. After all, what has happened to<br soft="">
this generation of children is still being examined, and in no way the dust has settled. It’s a big<br soft="">
battleground – from the pharmaceutical companies, to government, to big offenders of<br soft="">
environmental contamination, all wrapped up for us in a big bow. No one wants to raise their<br soft="">
hand and be accountable. We are still in the Cover Your Ass and Let’s Run and Hide phase of<br soft="">
this pandemic. <br>
<br>
We all discriminate. Let’s face it, we all want our kids to play with the perfect friend. A mild<br soft="">
temperament, similar or higher developmental level, good natured, doesn’t hit or bit, and has a<br soft="">
nice mom. We don’t want our kids to pick up bad habits. We want them to have a positive fun<br soft="">
experience. Parents discourage their kids to play with the ‘wrong kids’, those that may not look<br soft="">
typical, wear different clothes, come from a different socioeconomic background, have strange<br soft="">
parents, do poorly in school, or are just plain squirky. <br>
<br>
With little information and TV movies to go on, these parents are in the dark about Autism, how<br soft="">
vastly different each and every kid with the same diagnosis presents. They are unaware of the<br soft="">
fact that this is THE NEW GENERATION of typical peers – 33% of the kids in elementary and<br soft="">
preschool classrooms in America have some developmental issue. Pull-outs galore for<br soft="">
reading, writing, and other learning challenges are the norm. Having an ASD is now part of the<br soft="">
norm. A handful of kids for</span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">each</span></font></u> <font size="2"><span style="font-size:14px;line-height:17px;">class have services of some kind. Really. <br>
<br>
All parents know is that they want to protect their kid. They want the best possible learning<br soft="">
experience in school. They want to make sure they can learn without distractions in school. <br soft="">
They can’t teach tolerance because they themselves are ignorant. They don’t know what to<br soft="">
do with an Autistic kid at a birthday party, on a soccer team, or at their house for a play date. <br soft="">
It's awkward, uncomfortable. How should they act? What do you say to the mom? They don’t<br soft="">
want THEIR kid to be affected in a negative way by an Autistic kid. Often, instinct and fear<br soft="">
guides us parents, myself included. Sometimes that's a good thing. </span></font><u><font size="2"><span style="font-size:14px;line-height:17px;">For typical parents,<br soft="">
ignorance and fear make them choose the easy route - don't call, don't invite, avoid.</span></font></u> <font size="2"><span style="font-size:14px;line-height:17px;"> <br>
<br>
Each new school year parents are faced with more and more aides in classrooms with no<br soft="">
explanation. Parents lack knowledge about this NEW GENERATION of typical peers. The<br soft="">
irony is this - Autism is the norm, part of the typical make-up of our classrooms. <br>
<br>
There is no leadership. No one sets the tone. Sadly the school district, PTA’s and other<br soft="">
organizations are not straightforward. It’s discussed in small groups of parents off-the-record. <br soft="">
Economics play a big role when districts try to accommodate special kids’ needs at their<br soft="">
various schools. They must look at their unique population of children that require services<br soft="">
and try to accommodate everyone with what they've got - their pool of therapists, equipment,<br soft="">
space, transportation, and lay it all out like a big puzzle. One school may have a lot more<br soft="">
special needs kids because it’s newer and has the space for therapy. With no explanation,<br soft="">
parents grumble and ask “Why does my kid get stuck with 3 special needs kids and their aides<br soft="">
in my classroom? One child isn't even in this district!” they exclaim. This adds fuel to the<br soft="">
discrimination fire. <br>
<br>
Parents have NO IDEA the complexity in fulfilling a child's modified education program – while<br soft="">
minimizing costs at the same time. Bus routes, sibling separation, while attempting to<br soft="">
maximize child's hours AND therapists hours at school. Parents don’t realize that when they<br soft="">
DO see a special child in their classroom with help, one of two things have occurred: <br>
<br>
*The child has very significant issues that disrupt the classroom, so the school has to address<br soft="">
them.<br>
<br>
*The parents had to sue or fight like hell to get those services.<br>
<br>
Because of the factors, particularly economics, schools are constantly faced with making hard<br soft="">
choices, often playing "god" on whom is worthy of X,Y, and Z. Schools aren't in the position to<br soft="">
automatically hand out a beautiful program on a silver platter. They do what is best<br soft="">
economically first. Incredible isn’t it??<br>
<br></span></font> <b><font size="2"><span style="font-size:14px;line-height:17px;">Because the therapists filter information<br></span></font></b><font size="2"><span style="font-size:14px;line-height:17px;">Therapists are reluctant to share stories about cases where the kids make it all the way<br soft="">
through and are blessed with a “normal” life, a life no longer disabled. They are even reluctant<br soft="">
to share huge gains. If parents have this knowledge, they feel the parents would expect this<br soft="">
outcome. They want the parents to be realistic and not give false hope. The benefits of<br soft="">
sharing what can happen, what DOES happen can inspire. It can give the fuel needed for a<br soft="">
desperate and overwhelmed parent to figure out what they need to do. This far outweighs the<br soft="">
very small percentage of cases where you leave the parents feeling depressed or inadequate<br soft="">
or filled with unrealistic expectations. As of August 2007, I can attest to this personally by<br soft="">
comparing positive comments versus negative ones I get in my Inbox. <br>
<br>
I resent the fact that providers choose to make life a bit easier on themselves, sacrificing hope<br soft="">
for certain families. It the PARENT’S right, not individual providers or schools to filter ASD<br soft="">
info. This makes me crazy! A friend recently shared with me “it’s like a cancer doctor NOT<br soft="">
telling a patient there is hope for recovery simply because not all patients do recover.” <br>
<br>
Some providers don’t believe there is ever an end to therapy. Therefore, they do not believe<br soft="">
in recovery because it goes against the philosophy behind the intervention they practice. <br soft="">
Also, the new technology hasn’t been played out in great numbers into adolescence and<br soft="">
adulthood. If it’s not published in a journal with science to back it up, it doesn’t exist to them. <br soft="">
And we all know that answers don't begin in a journal. How many times have you read a piece<br soft="">
of research, and ask yourselves why in the heck did they put money into THAT? The general<br soft="">
public already knew THAT answer!<br>
<br>
Research, technology, and learning grows each day. Parents are the managers. From home-<br soft="">
life to the biological piece to the therapeutic piece. No one else is in that position. Any parent<br soft="">
would love to share this role - impossible. Every week parents tell me how my story inspires<br soft="">
them. “Is it worth it? All this work? All this money? This sacrifice? The confrontation with the<br soft="">
school district? <br>
<br>
What if I said no? First, it would be a lie. Second, there may be many parents that wouldn't<br soft="">
react by ACTING. Moving their obstacles out of the way to really tackle the disabling parts of<br soft="">
ASD. Maybe they would not be as committed. Give up. Thinking that it’s a fight they can<br soft="">
never win is dangerous. Each kid can win no matter how close they get to recovery. <br soft="">
Significance, age, or other factors should not be an issue towards maximizing the potential of<br soft="">
your child, leaving no stone unturned. <br>
<br></span></font> <b><font size="2"><span style="font-size:14px;line-height:17px;">Media, and what we can do<br></span></font></b><font size="2"><span style="font-size:14px;line-height:17px;">The Autism community must press to provide training to schools. The Autism community must<br soft="">
press for articles in general magazines and more T.V. about the enormous differences within<br soft="">
the spectrum. How about an article sharing the day in the life of a mainstreamed child, with<br soft="">
viewpoints from other parents and their peers? Don’t get me wrong, I’m happy about any<br soft="">
Autism press. However, providing stories only about the stereotype</span></font> <i><font size="2"><span style="font-size:14px;line-height:17px;">increases awareness<br soft="">
about Autism but doesn’t provide any new information about the profile of our children today<br soft="">
and how that impacts our childrens’ school experience. <br>
<br></span></font></i> <font size="2"><span style="font-size:14px;line-height:17px;">We need education. Nobody is facilitating relationships between typical and ASD parents. <br soft="">
Although Autism and Aspergers are trendy these days in media, the subject is taboo in real<br soft="">
life. We are not utilizing the information that is so accessible for all to see, as a parent, a<br soft="">
neighbor, a teacher, a school administrator. Early intervention funding will get a real fighting<br soft="">
chance at passing on all levels – federal, state, and local if we raise awareness</span></font> <i><font size="2"><span style="font-size:14px;line-height:17px;">and bust this<br soft="">
thing wide open.</span></font></i> <font size="2"><span style="font-size:14px;line-height:17px;"> <br>
<br>
THE NEW NORMAL<br>
<br>
The new normal is mind boggling. The numbers are much higher in the younger years like this<br soft="">
and taper off as you look at middle and high school.<br>
<br>
A great stat from the American Acad of Peds states that</span></font> <b><font size="2"><span style="font-size:14px;line-height:17px;">1 in 6</span></font></b> <font size="2"><span style="font-size:14px;line-height:17px;">kids born today have a<br soft="">
developmental disorder or developmental delay.<br>
<br>
Here is what my son's typical playgroups and classes looked like through the years so far:<br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">New Mommy Group 0-1 year old</span></font></u><font size="2"><span style="font-size:14px;line-height:17px;">:<br>
10 kids in total (natch, they all didn't have a dx then):<br>
2x Autism Spectrum Disorder<br>
2 x ADD<br>
2x Sensory Integration Disorder<br>
1x Speech and fine motor delay. The speech kid couldn't be understood by his peers until he<br soft="">
was 5 years old, so it wasn't a redefinition of criteria.<br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">Preschoo</span></font></u><font size="2"><span style="font-size:14px;line-height:17px;">l: Class of 18 kids: my kid with Autism, 3 kids with a speech delay, 1 kid with sensory<br soft="">
integration, one kid with ADD.<br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">Kindergarten</span></font></u><font size="2"><span style="font-size:14px;line-height:17px;">: 20 kids total in typical classroom in a public school. 2 kids ASD, one kid ADD, 3<br soft="">
kids speech and OT delays. Again, the speech and OT delays affected their ability to be<br soft="">
understood and do any projects. The teacher had been doing the "same ole" for 20 years, so<br soft="">
it wasn't a change in criteria here anyway.<br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">1st grade</span></font></u><font size="2"><span style="font-size:14px;line-height:17px;">: 22 kids in total. One kid Autism, one kid Down Syndrome, 3 kids with a behavior<br soft="">
plan, have IEP - unsure of an actual label, 2 kids speech, 1 kid OT, and 4 kids get pulled out of<br soft="">
class for reading help 2 times a week(they are barely reading, criteria could be argued here?).<br>
<br>
In total, in our little po dunk elementary school, 12% of all kids attending have an IEP. And this<br soft="">
doesn't include the kids that we all know need one or had one previously.<br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">2nd grade:</span></font></u> <font size="2"><span style="font-size:14px;line-height:17px;"> 3 ASD kids including Leo confirmed, and 2 behavior plans. And interestingly, the<br soft="">
parents of typicals think the para is there to help the teacher, when in fact she's dedicated to<br soft="">
one child. Only a few know of the one special needs child (ASD). Leo and one other boy have<br soft="">
ASD. No one knows about Leo, and a few know about the other boy, but not in this class. <br>
<br></span></font> <u><font size="2"><span style="font-size:14px;line-height:17px;">3rd grade:</span></font></u> <font size="2"><span style="font-size:14px;line-height:17px;"> Only one month into school. I can see two behavior plans and Leo as the only<br soft="">
ASD child. </span></font><font size="2"><span style="font-size:14px;line-height:17px;">Business as usual. He loves his new teacher and likes switching classes for math. </span></font><font size="2"><span style="font-size:14px;line-height:17px;"><br>
<br>
*Ashley Morgan, parent of *Leo, age 8 1/2, recovered for 3 years. busterfoofoo@gmail.com<br>
*These are alias names for protecting my son from discrimination<br soft=""></span></font></span>
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<span class="text"><b><font size="2"><span style="font-size:12px;line-height:15px;">Autism recovery can happen! A parent's experience with<br soft="">
High-Functioning Autism. Diagnosed at 2 with PDD-NOS, and recovered by<br soft="">
kindergarten.</span></font></b> <b><font size="2"><span style="font-size:14px;line-height:17px;"> </span></font></b><b><font size="2"><span style="font-size:12px;line-height:15px;">Articles and documentation by Ashley Morgan, mother<br soft=""></span></font></b></span>
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